Return to sender: no longer at this address

My mother is a wizard with plants
I kind of knew it already
But when my father was upset
Because he'd never see the morning glories
Bloom again in his life
My mother secretly coaxed
A morning glory vine
Out of season
To bloom, and climb, to bloom, and climb
And she took him outside
To show him the magic she'd done
And that's how much my mother loves my dad

My flowers are my poetry
I coax the words to bloom and grow
And climb and climb into his heart
Even out of season
I use words to express the wordless
And that's one kind of magic I have
And that's how much I love my dad

But one of these days
I'm going to write a poem
It will be full of obscure mountain lakes
And treks across the mountains to the sea
And forest floors that were so much more
And owls hooting up in the trees
It will show him every place
That I could feel his love
Without the emotional bombardment
Of living in the city

And it will be a perfect poem
For that time and that place
It will certainly be better than this one
It will show him that I care for him
(As if he doesn't know by now)
It will show the depth of love
That death can dredge up when you're lucky

And then i will get a phone call or an email
It will start out:
“Go and take your dexamethasone right now.”
And I'll have a sinking feeling
But I'll take the syringe of steroids
And put it in my feeding tube
Then go back to the phone or the computer

Then they'll say
“The news is bad
Your father has passed away
He was far too tired this morning
To check your blog today.”

And all that's left of my magic
Will be words on a screen
Words he may have understood
But will never hope to read

From that point on forwards
We'll be separated by time
We both will have existed
But from that point in time onwards
I will be here and he won't

I wonder how much dexamethasone it takes
To avoid adrenal crisis when your dad dies
I wonder how much magical love it takes
To stand the pain you feel when you realize

That you will never talk to him again
You'll never hug him again
You'll never sit next to each other
With an elderly cat spread across your laps
You'll never ask the questions
You forgot to ask when he was alive
You'll never play with his beard again
And there's so little time
There's so little time

But I'm wrong
Like people are often wrong about time
Eternity is all around us
That's all the time in the world
Eternity is where love exists
Outside of time and space
So even if he never reads my best poems
He'll feel the love that went into them
Just as he feels the love
From that morning glory vine

He feels the love from his two pet dogs
He feels the love from his wife
He feels the love from his three adult children
He says he's lucky to be surrounded
By so much love

So I'm terribly sorry, Ron
If some of my poems don't reach you in time
And i'm terribly sorry Ron
If I try to Skype you and it turns out you're gone
Just know I love you more
Than even the best poet can convey
I love you more than I could ever say

And love is the magic that made my mom
Able to grow those morning glories
And love is the magic that makes me able
To write poems daily after years of dormancy
And love is the magic that connects you to me
It's the way we can feel each other's love
Without any form of contact at all

I hope the place I built for you outside of time
And filled to overflowing with my love
Will see you through

And I hope that I'll continue
Writing poetry to you
Long after you've gone

And I hope it reaches you in Eternity
Or wherever it is you're going

And I hope that even the worst of it
Conveys this message:

I love you
I love you
I love you

Tube Love

Drawing of a GJ feeding tube.

Tube Love

Its name in medical-ese is a gastrojejunostomy tube
Or a GJ tube for short
I just call it The Tube

Through nothing more than some tubes
And a syringe
And a feeding pump
I give myself water
I give myself food
I give myself meds
I give myself life
Bypassing my paralyzed stomach

I drain out the life-destroying bile
That would otherwise suffocate me
In pneumonia after pneumonia
Until I eventually got unlucky and died

There are no words for the feeling
Of giving myself a big syringe of cold water
On a hot day
And feeling every inch of it go
Cold
Into my intestines
No stomach to hold it back
No stomach to vomit it up

Maybe the word is love?
My tube is not an inhuman machine
It is a part of me

If love means that you take care of someone
If love means that you save someone’s life
Without thought for your own
If love means that day by day, you do the hard work
Without complaining or tiring
Even when you get clogged up and miserable
Then surely my tube loves me

And I love my tube
It has a personality
It’s grumpy on some days
And happy on others
I try to make it happy

I know more about making a feeding tube happy
Than any of those doctors and nurses
From Gastroenterology
From Interventional Radiology
From Pulmonology

They said I had the mind of a child
That I would pull my tube out trying to play with it
The way young babies do with their feeding tubes
They said I didn’t have the cognitive capacity
To take care of a feeding tube
They said I would fail
They said I would be better off dying
Than even trying the feeding tube
And above all, they said I wouldn’t know
How to take care of it
That it would be a huge burden
That maybe, I belonged in a nursing home
Where they knew how to take care of things like that
And people like me

I just got out of the hospital
The nurses were amazing people
But they nearly ruined my feeding tube
They didn’t know how to make it happy
I’ve been to Interventional Radiology enough
To know that they don’t know the slightest thing
About making a feeding tube happy
Not even the doctors who predicted my doom
Know how to make a feeding tube happy

But I know how to make a feeding tube happy
I have been learning for a year now
Every day, I learn more
Every day, I learn that
If you treat something as if it is alive
And you treat it with respect
Then it will be happier
And it will work better
And it will like you in return
Maybe even love you
And it will give you
Everything it has to give

I love my feeding tube
And my feeding tube loves me
My feeding tube takes care of me
It keeps me alive
It works hard all day long
To keep food and meds and water moving smoothly
And I work hard all day long
To make sure it has the resources to do it with

My feeding tube and me are friends
My feeding tube and me are a team
My feeding tube and me like each other
My feeding tube and me love each other

We have a relationship
My feeding tube and me
We are connected intimately
It is not just a piece of plastic
It is a life-saver
It brought me back from certain death
How can I fail to love it?
And how can I fail to interpret its efforts on my behalf
As its own kind of plastic cyborg love?

I love my feeding tube
I will always love my feeding tube
I don’t care how it sounds
I don’t care if anyone understands
You can’t go through some things with someone
Without finding love there
And with its fate intertwined with mine
Its plastic intertwined with my stomach and intestines
Love is what we’ve found,
Me and my feeding tube
And I will always find ways
To make it happy

Art and poem by Mel Baggs, art 2013, poem 2014.  This is my contribution to Gastroparesis Awareness Month (August).  To learn more about Gastroparesis and related forms of Digestive Tract Paralysis, go to the G-PACT Website.

I also wrote a longer and more serious post about my life with gastroparesis, which you can read here at Gastroparesis Awareness Month: A Day In The Life.

Unfolding

Sometimes I want to unfold
The beauty of the world
As if it was the most intricate
Origami flower
That had ever seen the light of day

Then I want to wait
And wait
Until the flower blooms for real
Until its velvet black blossoms
Tinged with purple edges
Grow fuzz that you can run your hand over

And I want to hand it to you
And watch you rub the fuzz
Against your cheek
Against your lips
Against your nose —
The yellow-black stamens tickle

And then fold the flower
Back into paper
And put it in my pocket
For safekeeping

I would make more of them
And write secret notes
That only some people could read

They would say things like:

“The most beautiful things
Are concealed all around you.”

“You are a flower and
This is how you become real.”

“You are unfolding
Just like this.
Don’t hurry,
Don’t wait.”

I would hide them in plain sight
And I would hide them in places
That only the curious and observant
Would bother looking

I would hide them in places
That can only be found
When doing shit work
For 22 cents an hour

I would hide them so that each person
Stood a chance of finding at least one
Just one
That told them what they needed to hear
Right now
Just then

Unfold them, they become real flowers
Fold them, they become folded paper
You can do this as many times as you need
Because they are magic flowers

And if you get good at looking and listening
With more than just your eyes and ears
You will find these creations everywhere
Left by someone
With far more magic
Than I will ever possess

You know when you find one because
Suddenly something ordinary
Becomes extraordinary
Suddenly you’ve been let in on a secret
About something you’d seen before
But never seen before

It can be anything from
A spray of mud on your pants
To a pair of decorated crutches
To a butterfly

It doesn’t have to be pretty on first sight
Many times it isn’t
Many times it seems horrible
Until that flash of inspiration
When it unfolds into a flower in full bloom

And then every texture is like suede
And every color is like the deepest blue before dawn
And every taste is like boiled collards with butter
And every smell is the fur behind a cat’s ears

I wish I had the magic necessary
To make these things myself
To fold reality into paper
And leave it everywhere for people to find

As it is, all I can say is
Someone has already done it

You can find these magic folded papers
On the inside of a zero
In the yawn of a kitten
In a feeding tube
In a wadded up rag
In a tangled old root
In a leaf that skips down the sidewalk

And all of them are flowers
And all of them are there to tell you
There is more in this world than you can ever see
There is more love
There is more light
There is more beauty

And you are part of it
Always
Even
(Especially!)
When everything seems to be
Crashing down around you

Can you accept
This magic spell
This gift
From the world
To me
To you?